When we saw the oncologist on Friday, we mentioned that we had decided not to read anything on-line about lymphoma (which they agreed was a very smart thing to do!). The nurse practitioner did tell us, however, that we could go to the web site for the Leukemia & Lymphoma Society for reliable information. We've both spent a little time there and it is full of information, some we want to know and some we don't. For those who are interested in learning more, the web site talks specifically about the subgroups of non-Hodgkin's lymphoma - Lori has follicular lymphoma, which is considered one of the indolent types.
We also read an article on non-Hodgkin's lymphoma that was published today by the New York Times. The article focuses primarily on the rising rate of non-Hodgkin's lymphoma as well as the amazing advances in treatment. We don't think that Lori will need treatment now, but according to this article, if she does now or in the future, she will have many options that are considered successful and possibly curative. The oncologist has already discussed Rituxan with us as a likely future treatment.
All of this reading has given us even more hope than we felt on Friday and has of course added to our list of questions for the next visit! We are hoping that our next appointment with the oncologist will be Friday, May 2nd. In the meantime, Lori had blood work done on Saturday and will have the bone marrow biopsy this Wednesday and the CT scan on Monday, April 28th. We'll get the results of all of those tests at her next appointment and will find out then what the final plan is. We'll update everyone then.
In the meantime, life goes on so our next post will hopefully be about the nice weekend we had enjoying our family. Ellie was in a very performing mood today so we got some great video of her "reading" and singing. She also rode her tricycle for the first time on Saturday, which we'll post pictures and video from. And tomorrow it's back to work and "normal life" for both of us. We really needed the few days at home that we were lucky to be able to take, but it is definitely time for Lori and I to get back into our usual routine.
1 comment:
You two are handling this terrible thing the way you handle everything - TOGETHER! Isn't it the secret of success?? I am so proud of you both. You have handled a very upsetting situation with grace.
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